Miracle for me?

Sperm takes about three months to produce. ML has been on the FSH therapy for nearly 3 months now. The UR gave us a 50% chance of the FSH resulting in enough sperm for ISCI. I don't think that the FSH is actually going to work, but at the same time I have a secret hope that it will work so well that it will completely restore his sperm production and I'll have a surprise pregnancy. Its not likely, but it's what I want. The UR said that our case of late stage maturation arrest is so rare that he has only seen a few in his entire career. So really, the UR doesn't know what's going to happen. He can tell us that there is a 50% chance of the FSH working, He can tell us that even if it does work there will probably not be enough sperm to spill into the ejaculate, He can tell us that its going to be sunny on September 17th. He doesn't know.

I started my cycle today. Following the shortest cycle ever at 24 days. I am a very consistent 28 day cycle with ovulation on days 13-15.

Once before we were really trying, but after we'd quit really preventing, I had a 35 day cycle. I would have sworn that I had a chemical pg that month, until we got the azoos diagnosis, that is. I actually took a pg test after my period started. We jumped in the shower, I took the test and set it outside of the shower so that we could get the results together. That was my first pg test.

You always hear about women who swear that they had their period while they were pregnant. I admit that I watch all those TLV shows, and i just didn't / don't believe that my period is a sure sign that there is nothing else going on up in my belly. Azoos, on the other hand, is pretty definite in my mind. Since the Azoos diagnosis I have no doubt that there is nothing going on up in my belly.

So anyways. I started early today. and I have a secret hope that the FSH is going to work wonders. So maybe, just maybe, this is not my cycle, but instead its one of those pretend cycles that pg girls get. Maybe, just maybe, there could maybe be something going on up in my belly.  You think?

I don't believe it enough to do anything about it, like take a pg test or anything. But I do like thought, and I do like the hope.

Presenting My New Blog Design

Check it out! My new blog design! I love it. It makes me smile everytime look at it.

This blog has been a wonderful outlet for me. An essential tool in my toolkit of coping strategies. I wanted it to feel warm and welcoming when I visit. I wanted it to feel like 'me'. I wanted this space to hold my words and thoughts and emotions with strength and confidence.

Super awesome Alison, a fellow Azooser, at Giggly Girl Designs somehow managed to decipher the mess of ideas that I threw at her and come up with this beautiful design that I love. and in the process I got to talk with her on the phone, which may seem like such a tiny simple thing. It was however just what I needed to realize how much I really needed to get myself to a RESOLVE meeting. Little steps, one at a time, that lead me to places that I need to be.

***
I had a dream last night. I was pregnant. We'd just completed our first IVF cycle and I was in the 2ww, but I knew somehow. ML and I were overjoyed.  It felt so good, so positive, and so happy. In my dream I knew that we were only pregnant with one, although irl I have a sense/wish that there are twins in our future.

I've been reading and hoping for you gals (Rach,  Julie, Emmy) who are PUPO right now.  Maybe some of that positivity showed up in my dreams, and I am so thankful to have this comforting vision to hang on to as we move forward and actually get to 'try' for the first time later this fall.

I wish I could send some of my dream positivity from last night over to Jenni, who is struggling with a different set of dreams. My nightmares are the pretty standard 'a bad man is after me' dream where I wake up screaming for help.  I've actually had them with much more frequency than normal and I am wondering if it is a side effect of my happy pills. 

The more I think about it, the more inclined I am to head straight to IVF regardless of whether we can use sperm from ML. First of all, I am in a solid emotional state at the moment, but I question my emotional fortitude for doing more cycles than absolutely necessary. Since IVF has twice the chance at success as IUI, I can only assume that it means less cycles will be required to knock me up. Secondly, the cost of IUI with donor sperm is not cheap. We've been quoted between $2-4K per IUI cycle. So, three cycles could end up costing us as much as one IVF cycle with an equivalent chance at success. Except with an IVF cycle I wold likely have extra embryos waiting for me to use with a FET.  Has anyone else thought about this and actually run the percentages and costs? I'd be curious to know what others think about this.

In the meantime, I hope that you enjoy my new design as much as I do!

PS: Vegas is great. I spent all morning in the pool soaking up the sunshine. Ahhhhhh :)

Resolve Meeting - It was Awesome

I did it. Finally. I went to my first RESOLVE meeting last Sunday. It was wonderful. WONDERFUL.

My mom and I were going to be near the City to visit my grandpa for Fathers Day. She'd offered to go with me to a RESOLVE meeting in the past, and so I asked if she would be willing to go with me. We had a nice drive up in the morning. On the drive she asked how I was doing and how the hormone therapy was going for ML (my lover). I told her, again, the timeline and options that await us in the Fall. I adore my mom and she is more supportive than I could have ever asked for... but, it feels like I have to repeat myself and tell her again and again the 'plan' and the 'options'. In reality its probably only been a few times, and I know it is a lot to expect that she be able to remember all the details after hearing them once, but still... I just wish that she 'knew', without me having to say anything at all.

We had a nice afternoon with my grandpa. My cousins also came to surprise him. I have two teenage girl cousins who are just begging for trouble. Last time they came to visit me for a few nights I had to have the birds and bees talk with them, complete with a trip to planned parenthood so they could get the shot. Oh My god I would just die if one of them got pregnant. Cousin #1 confessed that she tried pot for the first time the week prior. I made her pinkie swear that she wouldn't do it again until she came back to visit me again.

Moving on to the best part of the day. My mom and I arrived at the RESOLVE meeting. It was held at a facility that provided advocacy and information about women's health issues. We were the first to arrive. The leader welcomed us and showed us to the circle configuration of cozy chairs and a couch. She was really pretty and nice. There was a coffee table with Resolve materials laid out. My mom picked up one of everything and chose a comfy chair seat. I took a portion of the couch across the circle near the leader. We made some small talk and waited for the other ladies to arrive. She mentioned that some of the other male factor couples would not be attending that evening, but that there were a few women considering donor eggs.

I honestly can't recall the order in which people arrived or exactly how the conversation came together. I was really nervous, but I could tell that a few of the other women were too. There were 8 of us in total at the meeting, including me and my mom. The leader made some introductory comments, read a poem (or maybe it was a segment from a book), then suggested that we go around the circle to share. I was the first one to share. It was great, but in all honesty overwhelming at the same time. I shared, then the other women shared. Seeing them nod and tear up as I spoke was... so... validating, reassuring, comforting... they 'knew' what i was saying, in that way that I didn't need to give the background, they just knew. They were right there with me. And then they spoke, and I nodded and teared up. I just don't have words for the experience. I felt like, like I didn't want to leave, like I wanted to sit with these girls for hours, and talk, and listen, and nod, and cry.

We did stay for a little bit after the meeting, a few of us. Two other women are using the RE that I had my initial work-up with. They love him and the clinic, which was nice to hear.

It was a big deal for all of us to be there, it was obvious by the wringing of hands and cautious smiles. My anxiety level was high for the entire meeting, but I felt like I just might have found a place that could be considered 'safe' to let down my guard. I have to say that again, I just might have found a group of women and a place where it is safe to let down my guard. Can you hear my exhale as I write that?

I can't wait to go back again. It is a four hour round trip drive on a Sunday night, but I can't wait.  the next meeting falls on the fourth of july holiday so it is being canceled and the next meeting won't be for a month. I will be there.

(Don't get me wrong, you gals RAWK my world, but until I can sit in a room with you for a few hours, the RESOLVE group is going to have to fill that void!)

* * * VEGAS SPA RECOMMENDATIONS?
I'll be in vegas this weekend, visiting family. I would LOVE to spend some time at a Spa, one where I can spend a portion of the day wearing a robe and slippers, order a drink, sit by a pool, soak in a sauna, and get a massage or some other decadent treatment.  Please let me know if you have any suggestions! Or if you live near Vegas and might want to meet up with me at the Spa :)

Baby Showers and Blog Posts

My best friend was twenty weeks pregnant when we got our azoos diagnosis. I had always pictured us being pregnant together.  I hosted her shower a few months after that. It was an intimate brunch with her closest friends and family. I sat at the table with tears running down my face. We went around the table to share words of wisdom as she became a mother and to share the meaning of our gifts to her. I had so much to say, but was unable to speak. It was all I could do not to burst out sobbing. The tears just rolled down my cheeks, my chin quivering on the verge. I love her so much and wanted so much to be a part of this special occasion, but the pain I felt was almost unbearable. Somehow I held myself together. I later apologized to her for not being able to say the things that I wanted to that day. She understood. She is a good friend.

I worried that seeing her baby would be hard for me. I wanted so much to love this little girl. We arrived at the hospital shortly after the birth, sweet baby was passed around to grandma and grandpa, aunt and uncle, and then to me. The tears came, but they were not of my pain, they were of a happiness and love for this little girl who had been born to the most wonderful family, of which I was a part. It was easy to place the little bundle back into the arms of my friend, her mother, right were she belonged. It was totally different than the baby shower. While I long to experience motherhood, this perfect little baby is somehow separate from that longing. I don't long for that baby, I long for my baby.

Another childhood friend recently had a baby shower. It was a long awaited pregnancy, following years of infertility, and I really am so happy for her. But I had the hardest time getting out of bed the morning of her shower. Instead I curled up and watched the 16 and pregnant marathon, and cried. I finally got to the shower an hour late. I smiled and managed not to cry, but actively avoided any conversations. I stayed long enough to participate in a few of the activities and watch her open my present, a little baby blanket that I made for her sweet baby girl. Then I left.  She understood, I know she hurts for me still. 

My sister in law has two adorable little ones. I love visiting them and wish they lived closer to us. Being with my nephew and niece has been okay too. These sweet little kids are hers, and while I love to visit them, I don't have any desire for her kids. I long for my family, the family that my lover and I will raise and love and nurture.
So many of our friends are starting their families. One couple, who I suspect may have struggled with infertility themselves, are celebrating the first birthday of their adorable little son later this month. This circle of friends does not know about out struggle. The thought of going to the birthday, of the people we'd see, and the conversations that are bound to take place, its more than I am up for. I don’t think that it is the baby that I am avoiding, it is the grown-up, the wives. I sent this friend an email, thanking her for the invite and saying that we love them but won’t be able to come to the party. I hope that she understands, even though she doesn’t know what’s going on with us right now. I’d hate to have her think that we are avoiding them because they are in a different place in life now. Its not that. 

I left the longest comment yesterday. I didn't realize how long it was until I submitted it. That comment became the basis of this post. There are so many incredible posts that really get me thinking. This post is really in response to two recent posts:

Mrs. Wood at Our Adventure with Infertility wrote a post about not being able to attend a friends baby shower. It is a struggle that got me thinking about the showers I’ve been to this past year and the emotions that have emerged.

Katie at 'from IF to when' wrote a post about bellies vs babies. It is an insightful post and really shines a light on what it is that I am feeling. I want so much for the experience of being pregnant, of having my belly grow big and round, of having my lover feel my stomach and the life growing inside with love and tenderness. I want that so much. I think about that so much. 

RESOLVE meeting in my future

Its all set. This sunday. After visiting my grandpa, my mom and I are going to my first RESOLVE meeting. The nearest group is a 2 hour drive from my home, and they meet at 7pm on Sunday nights, making it a logistical challenge to attend. Besides, I didn't want to go by myself, but didn't really have anyone to go with. I wrote to the Resolve lady at the start of the year, and have been getting the meeting reminder emails ever since. And Finally, I am going to go. 


I have to thank Alison, The Privileged Infertile, for helping me realize how much I crave a personal connection. She is working on a personalized blog design for me (I am so excited!) and called me to talk about what I want. It was so great to talk to someone else who is going through this. SO great! So great, in fact, I am going to finally attend a Resolve meeting. Thank you Alison!


Hopefully my meeting won't be like Laura's at Bumpy Journey, attended only by a lady gnome.  I still think that Laura is a HERO for attempting to lead a group. Someday I hope I'll be as awesome and strong as she is right now. 


On another topic, I am really loving all of the posts about Fathers Day. I had no idea that this would be such a hard day for me. The cards at target caught me so off guard, but I am feeling now like I am in very good company. These posts are so validating and make me feel like I am not alone.  

Costs - in Summary

One of the first things I worried about, when I starting worrying that something wasn't working, was the financial cost of infertility. I just knew that it was going to get expensive, very expensive. 


Keeping track of the bills has become a chore. I have one binder with our medical records, and another to keep track of the finances.  Our insurance specifically excludes coverage for anything related to the diagnosis or treatment of infertility, including complications from any such procedures. Almost everything has been out of pocket expense, but I am still submitting it all to the insurance on the off chance that we might get a reimbursement. In order to submit a claim to insurance I have to get an itemized billing statement, which most often requires a written request. It ends up being a 4-5 step process to get a response from the insurance. It has paid off too - they did end up covering a few thousand dollars worth of bloodwork, and part of the cost of My Lover's first biopsy. 


I've been keeping track of all of this in spreadsheet, but was afraid to sum the total of our out of pocket expense. The Cade Foundation grant application asked for the total that we've spent, so the time came to add it all up. Keep in mind that we have not yet had an actual opportunity to get pregnant.


$14,399.66


Getting price quotes in advance of treatment decisions has been one frustration after another. I haven't found anywhere online that lists out the standard costs for infertility treatments and it seems like the costs can vary pretty significantly. Since I've got it all organized, I am going to post our costs here on my blog - on a page called "costs", so that anyone can see what this all costs. I have all the CPT codes too - and would be happy to share those as well with anyone who wants the details. 


Jeff at Don't Try This at Home is also posting their costs - check out his list too.
Please let me know if there are other infertility cost summaries out there, and I'll add a link. 

Little Bits of Advocacy

My employer's group health insurance plan specifically excludes coverage for anything related to the diagnosis and treatment of infertility. I live in California and work for one of the largest employers in my County. I work for the boss, well, one of the bosses. If anyone can fix our insurance, she can, right?


I told her about our struggles last summer, when I was in Zombie condition. She is wonderful, understanding and kind. She knew when she hired me that having a family was my number one priority and that I would likely end up working part time at some point to be with my kids. She says the nicest things when I apologize for being distracted by our struggle, like, "Foxy, you are more effective now than most people when they are at 100%." It is nice and I know that she would do anything she can to support me.


I am super private about our infertility with everyone else at work. I'd originally called HR to ask about the options for changing our insurance, but didn't feel comfortable going into any details about our situation. I work very closely with the HR folks on work related stuff, and really don't need them knowing my personal business. I've been pondering how I can help my boss ask the right questions without revealing that I am the reason why.


The RESOLVE website has a generic letter to employers, and encourages all of us to send the letter to our employer and encourage them to change their insurance policy. There is apparently good research to show that infertility coverage actually results in lower premiums, higher employee productivity, etc...  So I took the letter, customized it for my workplace, and drafted it as though it was coming from my boss at the request of an anonymous employee. I've had the draft letter on my desk for two weeks and finally took a deep breath and pitched it to my boss on Friday. She could tell it was a hard thing for me to ask her and let me change the subject immediately.


I'd worked with a state lobbyist in the past on maternal health issues. She called me earlier this year to see if I would be willing to testify about those issues in the Health Reform  hearings. I let her know that I would be happy to testify, but confided that it would be hard considering our current struggles. Apparently she is also a lobbyist for fertility doctors. She told me all about some efforts that were underway to try and convince insurers to include coverage for IVF as a way to save on NICU costs. An insurer who covers IVF can limit the number of eggs that are transferred, lowering the 'risk' (or so they call it) of multiples. Multiples are more likely to spend time in the NICU, which is significantly more expensive than IVF.  Someday I hope that I will be strong enough to testify in support of this rational and logical approach to insurance coverage.


The thing is I just know that My Lover and I are not the only ones struggling with this. If one in eight couples experience infertility, then there must be many more in my workplace who are silently suffering. I am in a position to change things. We are all in a position to change things, when we are strong enough to speak up and have our voice heard.

Cold Sores. Yuk.

I hate cold sores. I was driving to work yesterday when I felt the initial tingle. I should have turned around right then and gone back home to search for the V.altrex pill I knew was in my medicine drawer. The real tingle started later in the afternoon, and I took the pill as soon as I got home. But alas I woke up this morning with a small but painful little cold sore. yuk. I remember when I got shingles a few summers ago. That was when my Dr filled that prescription. I told her then that we were trying and  I “might” be pregnant and was reassured that the medication wouldn’t hurt a pregnancy. 

I had a late start this morning. Some days it is just hard to motivate up and out of the house. Thank goodness that my lover found some coffee in the camping bin. We ran out  of our main stash earlier this week, and I keep forgetting to pick some up. Work was uneventful and I got to leave early to go to my weekly counseling session. We had a great conversation, as usual. I am so glad that I kept looking until I found this lady. (she’s the fourth counselor I tried!) I caught my lover for a quick kiss just before he went out for a bike ride. I hate so much that he is smoking at work, but that’s a different conversation for another day. I stopped back by work to pick up some projects that need to get done tonight, then headed home to find my sweet puppy waiting for me. 

Sweet puppy must spend a good portion of her day sitting on the couch watching the world pass her by through the front window. That is almost always where she is when I pull into the driveway. Her cute little ears, so excited to see me. I decided that she needed some new toys, so we headed out to PetCo. She was so well behaved! I got her a big bag of new balls and chewy things. It feels good to make sure that her play and chew needs are all met. Now that we are home she is trying to get all of the balls into her mouth at the same time. Four balls at once is her all time max, but tonight she can’t seem to top two. 

My Lover is working late again tonight. I am so grateful for this job, even if it is a short term thing. But I do miss him.

Happy Pills

Every night before I climb into bed I take a little pill. A magic little pill it is. I call these little pills my happy pills. They don’t so much make me happy, but they really do help me feel not quite so sad.

Seriously though, I’ve spent a lot of time reading the stories of so many other women who are living this life crisis and am a little shocked that no one else talks about this. Is it that no one else has a bottle of happy pills, or is it that no one else talks about it – even here where the most intimate details of our lives are shared.

The diagnosis of infertility is the worst news I have ever been given. It shook me to my core. It changed me forever. It was a trauma unlike any other that I have ever experienced. Everything about my life as I understood it, my purpose for being, my dreams my future, everything changed in that instant.

And yet I carried on, as best as I could, with my work, and my volunteer commitments, and my friends. Except, it was exhausting. I was exhausted trying to hold it together everyday. I walked around, going through the motions, yet the only thing I could think about was the overwhelming grief and the unspoken fears. Every time I got in the car, alone with the radio, I fell apart. I cried more tears in those first months than I have my entire life. But I managed somehow.

Waiting,

Appointments,

Waiting,

Tests,

Waiting,

Appointments,

Waiting,

Results,

Waiting,

Procedures,

Waiting,

Appointments.

Waiting.

It turns out I am stronger than I ever gave myself credit for being. I really am.

But it was so hard. And I was so tired. And the journey ahead felt like it was so far.

You know, we were seeing doctors, lots of them. But they were focused on the medical part of our infertility. The weren’t concerned with us, with how well we were handling the choices they kept giving us. And even if they had been, we were managing, we put on a good show, we were holding it together.

I suppose I could have gone on like that. Managing. Getting by. Going through the Motions. It sucked, but I was surviving.  We were surviving.

But then we got back the results of our second biopsy, the FNA map. I was hoping for good news that there was sperm and we could proceed with IVF. But I was also prepared for bad news that there was no sperm and we could proceed with DS IUI. We received the bad news, there was no sperm. But we also got a third option -6 months of hormone therapy to try and create sperm. I wasn’t prepared for the third option and it knocked me down hard. Six more months of waiting!?! Still no definitive plan!?! Thousands of additional dollars!?! I wasn’t prepared for this.

The idea of using donor sperm is so hard to accept. I started out thinking that it wasn’t even an option that I would ever consider. I even told my mom at one point early on that if we couldn’t use My Lovers’ sperm we were finished trying. Smart me, I reserved the right to change my mind about any decision at any time. At this point in our journey, I knew that we had to exhaust our options for full biological children before we could accept donor sperm.  I knew that I, we, still had some emotional work to do before actually moving forward with DS IUI, but it felt like an acceptable option for building our family, if we knew that My Lover’s sperm really wasn’t an option.

I wasn’t prepared for this third option and I just fell apart. I wasn’t strong enough to keep going through the motions. I just completely lost it. And I couldn’t pull myself back together. It was a combination of the sadness over the FNA results, the uncertainty of our next steps, and partly that I had just run out of energy.

My Lover and I had been seeing a couple’s counselor since we got the initial diagnosis, and she finally suggested that I ask my Dr. for a prescription for an SSRI anti depressant. Finally. Finally someone saw that I was suffering. Someone saw that the pain was overwhelming. Someone noticed that I could only tread water on my own for so long. Someone threw me a floatie.

The happy pills are my floatie. I’ve still got to tread water out here in this vast ocean. But I’ve got a little help. I’ve got a little more energy. I’ve got a little more perspective and the ability to feel beyond the pain.

It’s been at least a couple weeks since I cried. (I take that back, actually, because Dory’s comment about the Father’s Day cards had me going yesterday, but before that it had been at least two weeks.) Let me tell you I am so grateful for this break from the tears. I’ve spent time with friends, smiling and laughing, and ohhh is that nice.  I feel like me again, a changed me for sure, but me.

So, I suppose that this really long post is really to ask if I really am the only one with a bottle of happy pills, and if so why?

If the reason is that no one has noticed and offered a floatie, I hope that you’ll consider taking the one I am offering right now and make an appointment to talk to your Dr. I personally wish that I hadn’t waited so long.

the celebration society

One of the most wonderful things about being a part of this blog community is being able to read what others have written. I've discovered some of the most incredible amazing posts by the most talented writers. Your stories are so often my story, and your fears are my fears. Seeing the words already written down, articulated so beautifully is the most comforting reassuring experience. For the first time I don't feel quite so alone. I feel validated. I feel like I've found a safe place to explore my thoughts and emotions and fears and hopes. I feel understood in the most wonderful way, by you and by myself. 


I love leaving comments. I love leaving comments, even more than I love receiving comments. I love being able to say how a post makes me think and feel. I appreciate being able to express my appreciation to the author, to let them know that their post, their writing, their story has touched me in a meaningful way. 


Apparently I am not alone in this desire to appreciate my fellow bloggers! One of Mel's special projects right now is the Celebration Society.  Mel describes it as one of the most interesting delurking projects you'll ever participate in.  You can read the whole background story at Mel's celebration society post. Basically, the celebration society is a way for you to tell me what my blog or comments mean to you.  Really what I am hoping is that you will do the same on your blog - join the celebration society and create a place on your blog where I can tell you how much I appreciate YOU.


Ohhh - BTW - I just discovered that there are a few follow-up comments waiting for me at posts I have visited recently. I stumbled on a few of them, and can only assume that there are others that I might have missed.  As I said before, I love leaving comments, and would love to read your follow-up post, however I don't know that you replied to me unless you let me know. There must be a better way to keep track of comments, like a gadget or something that keeps track of the posts I comment on - if you know about something please let me know!